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Ehlers-Danlos Syndrome Fast Facts
Ehlers-Danlos syndrome (EDS) is a collective term for several disorders that affect the body’s connective tissue. The disorders cause problems with skin, bones, blood vessels, and internal organs.
Currently, 13 different types of Ehlers-Danlos syndrome are recognized.
Overall, about 1 in 5,000 people worldwide are affected by all types of EDS.
The most common type of EDS, called hypermobile EDS, causes joints to have an unusually large range of motion.
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Symptoms of EDS range from relatively mild joint and skin problems to potentially life-threatening complications.
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Ehlers-Danlos Syndrome Caregiver Tips
Coping with EDS can be especially difficult for children. The disorder can require adjustments to their lifestyle that can make them feel different and frustrated. As their caregiver, you can take steps to help them live with the disorder.